Resources

Resources

If you are looking for a resource and can’t find it, please call CCS at 510-208-5970.

Advocacy/Resources

Disability Rights CA

DRC is California’s protection and advocacy system. They give legal advice or representation. They investigate abuse and neglect.

Disability Rights and Education Defense Fund

A leading national civil rights law and policy center directed by individuals with  disabilities and parents who have children with disabilities.

Family Resource Navigators

Parent-directed community-based organization that serves families of children with disabilities or special healthcare needs.

Family Voices

Aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities.

Governmental and Health Care Organizations

Here are some links to governmental and health care entities that may be helpful to CCS patients.

Alameda Alliance for Health
Medi-Cal

Children’s Medical Services
Social Security

Diagnosis

American Academy of Cerebral Palsy and Developmental Medicine
Charcot-Marie-Tooth Association
Muscular Dystrophy Association

Shriners Hospital for Children- Sacramento - care for children with neuromusculoskeletal conditions and burn injuries
Spinal Cord Network – San Francisco Bay Area
United Brachial Plexus Network
United Cerebral Palsy

Bay Area Services

Ability Now Bay Area

Provides services to persons with developmental disabilities.

Alta Bates Disabled Community Health Clinic

Offers people recovering from chronic conditions a place to get to get unique needs met in conjunction with primary care physician.

Bay Area Outreach and Recreation Program (BORP)

Advances the lives of people with physical disabilities through sports and recreational activities.

California Department of Rehabilitation

An employment and independent living resource for people with disabilities.

Center for Independent Living

National leader for helping people with disabilities live independently and become fully participating members of society.

Circle of Care Grief and Illness Support Services

Circle of Care - East Bay Agency for Children assists children and families who are coping with grief due to illness or after the death of a loved one. Free or low cost peer support groups and resilient parenting groups are offered.

CoachArt

Arts and athletic coaching for families affected by childhood chronic illness.

Community Resources for Independent Living

Peer based disability organization that advocates and provides resources for people with disabilities to live independently.

Ed Roberts Campus

Universally designed transit oriented campus housing organizations and service providers for individuals with disabilities.

George Mark Children's House

First children's hospice house in the US providing medical, emotional, and practical support to families of children with life-threatening and terminal conditions.

Magical Bridge Foundation

Brings magical bridge playgrounds to Bay Area communities and advocates for inclusive play.

Make a Wish

Grants wishes of children diagnosed with a life-threatening medical condition.

Regional Center of the East Bay

Provides services and supports to individuals with developmental disabilities.

Special Needs Aquatic Program

Provides alternative physical therapy and recreational services for children.

Through the Looking Glass

TLG provides services for families and children with disabilities: parent support groups, developmental services and home-based services in Alameda County for families and their young children who have had particularly worrisome and difficult beginnings or who have ongoing physical, medical or developmental problems.

Resources for Diverse Populations

Family Resource Center- Fremont

The Fremont FRC is a welcoming place where families and individuals are nurtured, encouraged, and provided quality services to build on their own strengths to help themselves and others. Includes financial coaching, legal services, child-care.

La Familia

Counseling, parenting workshops and parent support groups in English and Spanish.

National Organizations

CanChild Centre for Childhood Disability Research

Research center dedicated to generating knowledge and transforming lives of children and youth with developmental conditions and their families.

National Child Traumatic Stress Network

Improves access to care, treatment, and services for traumatized children and adolescents exposed to traumatic events.

Equipment

Ablecloset

A resource for special needs equipment in northern California.


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